This is the story of our little girls journey of faith. Delainey has taken us along with her and we have learned a lot. She has taught us about faith, hope, love, prayer, trust, joy and perseverance. Never had I thought I would learn so much from anyone, especially a 2 year old. She is a fiesty little girl who was diagnosed with Synovial Cell Sarcoma at 17 months old and has since kicked cancer out of her life, hopefully for good.
Reading to roll
to the hospital. Thank you for all the prayers for our baby girl!
Our baby girl is
still back in surgery. No news yet, so hopefully it is going as planned. She
should be done between 9:30/10. Thanks again for all the prayers.
Her surgery was
done at 9:30, we are just waiting for her to wake up. Just talked to the doc
and all went well and went as he expected. I will write a more detailed update
a little later once she is settled in recovery. Max has been very brave and
D is sleeping in
The surgery went
well. The arteries and 2 main nerves were NOT in the tumor, so that is great
news. That means that her blood supply to her hand was not affected and she
should still have feeling/sensation in her hand.
tendons that were involved in the tumor that had to be removed, which can/will
cause loss of function in parts of her hand. We won't know how much until she
starts using it again. But we did see her fingers move so that's good. The
tumor wedged itself along and between her two arm bones so they had to remove
the membrane on the bone. Which could cause the bones to fuse together but it's
another "time will tell" thing. Radiation is still a likely option at
this point. Most likely we will go home tomorrow. Then we will begin planning
the next step.
Thanks for all
Adam, Max and grandpa are headed back to Sparta.
So it's a girls night at the hospital ;) hopefully grandma and I can get
"some" sleep. Otherwise maybe I will earn an early bedtime tomorrow
night. Hope to be discharged tomorrow-midmorning