Friday, October 3, 2014
So we got good news from D's scan....there are no new tumors and the tumors are "stable or decreased in size" which is also fabulous news! So we are waiting to hear from the surgeon after he has time to closely review them and make our official surgical plan. When we met with him earlier, we pretty much decided on one surgery through the sternum instead of two separate surgeries through the side doing one side at a time. Once he reviews the scans he will make his final decision on what he thinks is the best for her. We are hoping for only one surgery for the simple facts of reduced trauma, shorter recovery time, less time in pain, less chance of infection etc. But we will do whatever he feels is the best for her. A student in Max and Calleigh's class has been diagnosed with walking pneumonia...went home yesterday with 104 fever. A quick call to D's NP and suddenly we are homeschooling....briefly. Because D's surgery is next Wednesday and it is a LUNG surgery, it would be a huge risk to her health if she came down with this before/during/after surgery. Pray for us (or should I say my mom especially, because she had them all this afternoon and will have them all Monday and Tuesday.) They were very excited to get 3.5 days off of school...until I told them their teachers were sending us stuff for them to do and these weren't free days to just watch tv and play electronics. Trying to keep a 3 year old infection free with 3 in school is so exhausting and worrisome. Please pray that Lainey remains SUPER healthy from now until she is recovered from surgery...we will need all the prayers we can get on this!
Monday, September 29, 2014
Good Morning All! I just wanted to write a quick update on D. She recovered quickly from her last round of chemo. We didn't even need to go to Madison for a blood or platelet transfusion this time! So we have actually had 2 and a half weeks at home with no trips to Madison. We have been spoiled! We have been making some awesome memories as a family these past few weeks. With Lainey feeling good we were able to get out and do some fun things together and we all needed that. Tomorrow night we head back down to Madison for an early morning PET and CT scan on Wednesday morning. This really won't mean much to us, it is basically for the surgeon's use for her surgery next week. It will be his updated road map for her lung surgery. It will be interesting to compare it to the last PET and see what's changed. Lainey's arm is healing nicely, the stitches are starting to come out and she has been utilizing it to hold things again so the tenderness must be gone. She doesn't need to keep the dressing on it anymore, but she likes to. I think once the stitches are all out she will be fine without it, they look kind of funky so she doesn't like to look at them. Other than that we are all doing well. We have had a fun weekend of celebrating Max's birthday, tomorrow he turns 9! Can't believe he is halfway to adulthood! I will update after we get scan results from Wednesday, but I am sure there won't be much to report. Thanks again for all the prayers, we are honored to have them.
Tuesday, July 29, 2014
Our Caring Bridge post from July 28th, 2014: We were supposed to be going to Madison on Wednesday for her scan and round 4 of chemo. But they couldn't get her scan scheduled on Wednesday. So we'll be spending my birthday weekend at the hospital. Maybe they can throw me party 🎂🎂🎂 Her PET scan is scheduled for Friday around noon. Then her chemo will start after that. We will meet with the doc who is performing her lung surgery while she is in for her scan. We will get the details on how he will remove all the tumors from her lungs. This surgery will probably be end of October/early November. On Tuesday we have a meeting with her orthopedic surgeon who will be doing her arm surgery/amputation, to go over those details. That surgery will probably be the last week of August/early September. She has been in a fabulous mood these past few days, doing dance parties and staying up late to "party". It's so great to see our girl so happy. Thanks for all the prayers!